daughter

Not Looking After Dad

/ Margaret / 2 Comments

Last week was National Carer’s Week. Apparently. I found this out quite accidentally when someone mentioned it at church after a family baptism (more on that later). 

*Makes mental note to contact Carer’s Association about their PR*. 

Apparently,  we were meant to be celebrating carers. Which is odd, because the people being cared for most probably can’t organise anything,  even though they are very grateful, and those doing the caring are just too damned tired to organise their own celebratory morning tea, or shout it from the rooftops. 

However in the spirit of acknowledging carers week, I like to think I celebrated early because for three weeks before this I was NOT looking after dad, and had a little holiday. 

I needed a break, and a long one; not just a long weekend. I needed not to have to think about ulcer dressings, transport to and from church, buying special cheese, trips to the doctor and physio, cooking meals, and all the other things I do for dad.

I needed not to be looking at my watch at 7.35am, hoping that Dad has just forgotten to call at 7.30am as he does every day (just to let me know he is up and about!).

I went overseas.  To a different country, and a different timezone. It would not have been possible with my village – but especially my sister, who came to stay for all but the five days of the three weeks I was away.

Image 24-10-2017 at 6.07 pm

 

She, together with the regular help from Five Good Friends, and additional help from them on those extra days, and my husband, I had a complete and total break form the ‘every day’.  I went away with a friend, both abandoning husbands and children, for three weeks in the UK.  The bonus is that most of that time we spent with Dear Old Dad’s brother, my Uncle, in Cornwall and Wales. It was heavenly.

I read a quote once that said something like ‘You don’t know how heavy the burden is, until you no longer carry it’.  And that is true.  I look back on the photos of that holiday and I see that in the first few days my smile did not reach my eyes.  By week two that had all changed.  I felt lighter, and definitely more relaxed.

You see in order to get away, the preparation and organisation required was enormous- even for a very prepared and organised person.  The week before I was to go away Dad’s ulcer had become infected and a whole new dressing regime was required – so I was typing out instructions with photos of the different steps required in the days before I left.  He needed a new phone, so I set up all his regularly called numbers and SOS call button.  Plus a colour coded tabulated document with day by day activities and phone numbers of every person who may possibly be needed.  [Plus I had a dated, colour coded day by day itinerary for my holiday – naturally].

The best things about the holiday other than me just having one, sharing it with a friend and my darling Uncle – watching boats in the harbours of Cornwall, and the beautiful scenery in Wales, visiting the birthplace of the Mitford sisters, having afternoon tea at the Wedgwood factory (OMG!), lunches at two Michelin star restaurants (I won’t go on)?

One is that while Dad was anxious about me going away, and being alone for a few days, it was good for him to have a change of scenery in terms of people seeing him every day, and he coped very well with all the changes. Resilience is still one of his strongest character traits.  But the best thing is that I came back refreshed, and ready to get straight back into life at home, including caring for Dad.  I arrived home from London at 8am; by 9am I was down at his house, changing his ulcer dressing, and telling him about my trip, and good times with his brother, my Uncle.

 

OLYMPUS DIGITAL CAMERA

 

Father’s Day again

/ Margaret / Leave a comment

Father’s Day has come and gone again.  My Dear Old Dad has been a father for 61 years now. It would have been 63 but for the death of his and mum’s first child.

For Dad right now, and me, every day is Father’s Day!  Sometimes it’s also a bit like Groundhog Day, but the actual Father’s day is special.  Being a Sunday, the best gift he can have is to have me join him at church, followed by morning tea with his friends there.  He joined us for dinner so we could also celebrate Father’s day with my husband and children.

I am conscious that at my age, I have many friends who are now without their fathers, or who do not have a good relationship with their father, and Father’s Day must be difficult.  and I will be one of those people one day, which while inevitable, makes me feel very sad.  I can’t imagine a world without him in it.

Father’s Day makes me ponder what it is to be a father.  My favourite quote is from someone tragically named Wade Boggs, who, it seems to me was destined for a job as a plumber, but was in fact a famous baseball player.  He once said “Anyone can be a father, but it takes a special person to be a Dad”.  And my Dad is a special person.

We didn’t realise it at the time, but we grew up in a very forward thinking environment. Workplace flexibility and working from home are buzz words in the workplaces of today, but with a parish priest for a father, our Dad had his office at home.  He worked from home (although was often out of course), but of the many childhood memories I have, sometimes having afternoon tea with Mum and Dad after school, or having Dad pick us up from school, are highlights.

Of course having a father at home meant that our mother didn’t ever have to say “wait until your father gets home”, and I knew I was in trouble when I was summoned to Dad’s study.  The worst punishment was being told by Dad that he was disappointed in me.  I’m sure I’m not alone in that.

Going away for weekends was something we did not do, with church services on Sundays. But when we went on holidays, Dad was really on holidays.  We grew up with no mobile phones or internet, so our holidays involved visiting with cousins, going to the beach, and once, what seemed like an interminable caravan holiday (scarred me for life).  But holidays always  included cards, board games, and french cricket.  And lots of laughter.

Now that Dad is 95, who knows how many Father’s Days we have left.  So we must treasure every moment, even when it is upsetting or stressful, caring for him.  I have to remind myself that no matter how hard it is for me (and my sister) from time to time, it must be so much harder for him, becoming frail and dependent.  I think Dad would agree with Euripides (Greek poet, not a plumber nor a baseball player) that:

“To a father growing old, nothing is dearer than a daughter”

IMG_0398 copy

The Nervous Nineties

/ Margaret / 2 Comments

Cricket lovers will understand this expression. The nervousness of a batsman or batswoman making it to ninety runs, hoping to score a century, not out. The anxiety of hitting the ball and getting singles. 91. 92. 93 etc. Each one more difficult and nerve-wracking than the last.   I imagine this is what it must be like in your nineties, although some whose health is not the best may not wish to reach their century.

When Dad was heading for 90, he resisted plans for a 90th birthday party on the basis that he might not still be here.  This is a recurring theme, so convinced is he that his life span is all but over, all indications to the contrary.  But a party was had and it was a wonderful celebration at our home on our patio and under a marquee – high tea, with proper bone china cups (tea always tastes better from bone china), mum’s collection of tea spoons, with an endless supply of cake, sandwiches, and scones. Most importantly, many family members and friends were present for the celebration.

cups

cakes

 

 

 

 

It’s not often my dad is lost for words, but on this occasion he was, no doubt emotional that mum was not there to celebrate with him, but also to see so many people there that day, celebrating with him and wishing him well.

That was 5 years ago, and this year, like then, Dad, even six weeks beforehand, resisted any celebration of his 95th, on the basis that he might not be here. This year’s birthday was a much simpler affair – a morning tea after church, dinner with us at home, and then dinner out a few nights later on his actual birthday.

 

dad and daughter

Dinner at the Golf Club 8 August 2017

He still has the same gorgeous smile, and enjoys the many bottles of scotch he receives as gifts. That sounds worse than it is. He enjoys one glass of scotch late in the afternoon and his birthday and Christmas presents of scotch last him for months!  There are very few novel gifts one can purchase someone who has everything he needs.

Imagine what someone of his age has seen:

Living through the depression
Transport moving from bicycle to car – and now the news talks of driverless cars!
Plane flight going from a luxury to everyday
Man landing on the moon – and passenger space travel a real possibility
A World War and the horror of that war, and its aftermath
Television as entertainment in addition to the ‘wireless’
Computers and mobile phones (no phones attached to the wall now!)
The abdication of King Edward VIII, the coronation and death of King George VI, the Coronation of Queen Elizabeth – he may well see Prince Charles become King
The fall of the Berlin Wall
Twenty-three Australian Prime Ministers (four of those in the last 10 years alone!)
Twenty Queensland Premiers

I can’t work out how many elections in which he has exercised his democratic right to vote.

So much change and development has occurred in his lifetime, and with the pace of change accelerating, he is sure to see much more change in years to come.

The one thing that has not changed is his vocation and he recently celebrated 65 years ordination to the priesthood.

So here he is in his 96th year – will he crack the ton and get his letter from the Queen?  Or perhaps it will be King Charles? Time will tell, but every run he adds to his score will be celebrated.

Another trip down memory lane

/ Margaret / Leave a comment

One of the many privileges of caring for an elderly parent is the many memories that come up in conversation. I appreciate that those caring for parents with dementia may not have this particular pleasure. My dear old dad doesn’t have Facebook or even have a smart phone but today my Facebook memories reminded me that two years ago, Dad (then almost 93) and I travelled to Roma. 

Dad was parish priest at St Paul’s in Roma from 1962-1969, and describes it often as his and Mum’s ‘happiest parish’. He and mum had a young family, it was a vibrant country town, a beautiful cathedral-like church with a congregation that came from both town and properties outside town. They had good friends in a supportive community. 

So it was a lovely surprise for Dad to be invited almost 50 years after he left, to return to Roma to receive the debutantes. Who knew Deb balls were still a thing?  I heard him telling the story to someone just today that when he first told me that he had been invited and asked what I thought, my response was an immediate ‘Let’s go!’.  As much as I wanted to take Dad back to Roma, I was keen to see a relic from the past – the deb ball not dad’s friends.

As well as receiving the debutantes (that was an eye-opener for me – wow, just wow), Dad had the opportunity to catch up with old friends, and visit many places from his younger days, and of course visit St Paul’s.  It is the most beautiful church, and many of my memories are fond ones, even if I was very naughty.  The rectory, in my memory, had a verandah that was high off the ground.  My memory tells me this because I once cycled off it and busted my forehead.  In reality it is about 30cm off the ground.  The organ loft in the church, where I spent a lot of time sitting with my mother, was similarly not high off the ground but almost at ground level.  But the bottle trees that line the streets of Roma are still the same and just as beautiful as I remember them.

My Dad has the most beautiful smile, and I am sure his smile muscles were aching by the end of the weekend.  He still smiles when he talks about it.

collage

debpulpit

Atticus Finch and Me

/ Margaret / Leave a comment

You never really understand a person until you consider things from his point of view…until you climb into his skin and walk around in it:

Atticus Finch, To Kill a Mockingbird

Who doesn’t love To Kill a Mockingbird?  Both the novel and the movie.  I can remember the first time I read it, and it is still a favourite movie. The first time I re-read the book it was even better, as I could picture the characters – Gregory Peck was the perfect Atticus Finch.

My father was and is not a lawyer, but he is very much like Atticus Finch.  He has strong values to which he is faithful, has been and continues to be a good father, was and still is a leader in his community.  He is someone to whom others looked up, and always looked for, and saw, the best in others.  He and my mother lived a life of service to others, and the worst punishment as a child was to be told by my father that he was disappointed.

He is still, at 94, a man to admire.  I wrote a post recently titled Just Keep Swimming, my code for the need to keep going when times are tough.  Little did I know how important the words were.

I had a bad day last Sunday.  I wasn’t well, was tired, and something happened that made me upset, for no rational reason.  Dad needed something at the shops, and I had been to the shops that morning, taken him to church, was taking him somewhere else that afternoon, and I was generally a bit ‘over it’ that day.  I cried.  Ugly cried. I railed against the injustice of it all; the exhaustion. I guess I needed a cry – salty tears are a good cure for some ills – as I felt better not long after.  A phone call with my sister of course helped.  Figuratively speaking I gave myself an uppercut and decided to get on with it.

I realised that regardless of how difficult the situation was for me ( and let’s face it, it was only a momentary feeling, and one that I had had before, and knew it would pass), it must be so much harder for Dad – losing his independence, coping with so much change in a short space of time, facing the fact of the frailties of old age, and dealing with a bossy daughter who seemed hell-bent on changing his routines.

That realisation made me think of Atticus Finch and his advice to his children – to look at things from another’s point of view to understand what they are going through.  This had a calming influence on me  – perhaps it was not just the wise words, but the fact that I imagined Gregory Peck speaking them.

Change is difficult – coupled with old age it must be frightening.  And if Dad can do his best in those circumstances, then so can I.

I do hope Scout and Jem took care of Atticus in his old age.  I like to think they did.

atticus-finch

The Future is Here

/ Margaret / Leave a comment

Real generosity towards the future lies in giving all to the present – Albert Camus

In an ironic twist, our two eldest children have moved out of home within a week of each other, and our youngest, in his last year of school, recently got his drivers’ licence and is driving himself to and from school.

For a brief shining moment I could almost taste the freedom and the rewards of many hard  ( but of course rewarding and enjoyable) years of parenting.  Then all of a sudden, in a twist of fate, things changed dramatically for Dear Old Dad, I found myself caring for him – going from popping in once a day to spending many hours most days with him.

Last Friday night, I found myself home alone – with my spouse going to the rugby, my youngest out at a school event, and of course, the two eldest out of home.  Instead of dropping a meal down the road to Dad, I thought I would treat him to fish and chips so bought the fish and chips and a couple of drumsticks to eat with him at his home.

It was a nice change for him as he usually eats at home alone, unless he comes to or house for a meal.  But we ate early and dinner, including dessert,  was all over by 6.30pm

It was, as my spouse texted me, a glimpse into my own future – fish and chips at pensioner hours, and ice cream for dessert, followed by an early night. No Friday night frivolity for me.  The future is indeed here!

Just Keep Swimming

/ Margaret / 2 Comments

Just keep swimming – Dory, Finding Nemo

The loveable but forgetful blue fish in Finding Nemo (and of course Finding Dory) had a simple  and positive outlook on life.  When  things get tough or rough it’s important to ‘just keep swimming’.  A bit like Winston Churchill who once famously said that if you’re going through hell it’s important not to stop’.

Of course, caring for Dear Old Dad is nothing like hell, but there are plenty of rough times.

There are days when not much seems to go right.  And that’s just for me – not Dad!

When I’m having a frustrating day with Dear Old Dad (or myself as a result of what I do with Dad) I usually text my sister #justkeepswimming. Sometimes this is done with fingers stabbing at the keys or jaw clenched; more often with a wry smile. Yesterday was one of those days:

7 am – get to my PT (pretty much the only exercise I get each week due to chronic pain situation in my stupid feet). On the drive there, I calmly ponder the day ahead – before I go home I shall call into Dad’s place to change the dressing on his leg ulcer. This now has to be done only every three days instead of daily, and I had cancelled the daily visit from the Anglicare nurses only last week. The rest of the day stretched ahead of me. Monday is my day for not going out again once home – a day for ‘getting stuff done’.  At the moment I am still working part time until my replacement starts and I am anticipating a good start to the week. 

7.30 am. Regular three ring call from Dad to let me know he is alive and up and about. Three rings and he hangs up unless he needs to talk to me. I realise I wait with bated breath to not hear the fourth ring.

8.05  am. Phone call from Dad while I am in the car on the way home. 

“Where are you”

“I’m in the car on my way home”

“But you said you’d be here at 8”

“No darling, I said I would be there at 8.15; that you should get into the shower at 8”

“I’m sure you said you would be here at 8”

“Well I’ll be there as quickly as I can”

*remind self to make sure that he actually hears what I say when making arrangements.

8.15am Get to Dad’s house, right on time. Notice his wound is leaking through the dressing. Prepare dressing tray and take off old dressing. See his ankle is very red and angry looking and quite damp. Then notice a not so nice odour coming from his ankle. Take photo of wound. Clean wound and put new dressing on.  Make light of what I saw.

8.30am Go home. Send a photo to the wound nurse at the vascular specialist to ask if she thinks it is not right.

8.40am. Phone call from Dad. Reminds me that I was meant to call the physio to make an appointment for him at a time convenient to me.

8.45am Call physio and make appointment for Friday at 8am. Make cup of tea while on phone.

8.50am start working and I am on fire!  Kick a few goals in a short space of time.  Regrettably forget to drink cup of tea.

11 am Telephone call from nurse at vascular clinic. She tells me it looks infected and to get him to the doctor asap for antibiotics and immediately put the previous wound dressing on; the one that needs changing daily. Take a deep breath.

11.10am  Call GP and make appointment for 3.15 (earliest they could do).  Also call vascular specialist to make appointment for this coming Wednesday, just in case. 

11.30am  Back to Dad’s place to tell him I have to change the dressing again. The wound and the skin around it look even worse in the three hours that have passed. Change dressing according to the daily routine from the last three months and say a silent prayer that we won’t have to do this for the next three months. 

11.40am Go home. Work some more. 

1.00pm Go to my own appointment for deep tissue treatment for chronic foot pain. It hurts. A lot. 

1.35pm  Eat an entire packet of red frogs.  Not helpful.

2.55pm Collect Dad for the doctor. He is not happy he can’t see his regular doctor and I hide my annoyance because it is the only doctor who is available and he is lovely, kind, concerned and respectful. He thinks the infection has come from the adhesive from the new dressing, pulling on Dad’s thin skin. The nurse comes in and finds a new dressing to stay on until Wednesday when he sees the specialist. 

3.20pm Go to chemist for antibiotics. 

3.35pm Drive back to his house and have a cup of tea. I have thankfully remembered to put his dinner in the car in a small esky. It’s a small win for organisation skills and cooking enough food the night before for leftovers.

4.00pm Back home bit more work at my desk.

5.30pm Wonder if I could have some wine but don’t because I am doing Febfast and am committed and I would not be able to give myself a star on my star chart. Yes, really , I have a star chart.  But at this moment I am hating Febfast.

6.00pm. Start preparing dinner for my own family, wine glass full of diet lemon lime and bitters in hand. 

7.30pm Collapse in a heap on the couch and remind myself to #justkeepswimming.

In the words of Scarlett O’Hara, tomorrow is another day.

scarlett

It Takes a Village

/ Margaret / 1 Comment

It takes a village to raise a child – African proverb

It also takes a village to care for the elderly – Me

The old African proverb is absolutely true – the concept of a village has changed somewhat over the years and can now include people overseas via FaceTime rather than the people next door.

The proverb now needs to be applied to the elderly in our communities.  My Dear Old Dad lives on his own. He needs a village and he has one and it includes:

Me – chef, chauffeur, nurse, pincushion when he’s frustrated, shopper, postmistress, cribbage player, Oscar vomit cleaner, general organiser of his life, carrier pigeon for letters to his brother via email.

My husband – patient listener, conversationalist, light bulb changer, dinner companion, occasional chauffeur, hacker of plants and weeds, forgiver of how much money it costs us to look after him, occasional provider of free legal advice

Oscar – spoiled cat, companion, listener, sharer of his thoughts.

My sister – host when Dad goes to visit or when I am away.  See the reference to ‘Me’ above for when he visits and replace cribbage with scrabble. Also frequent visitor and sharer of photos of Dad’s great-granddaughter.  Also emotional scaffolding for me when required (often).  Is much more patient than me.

My brother-in-law – companion when Dad is visiting, willing cribbage player, chauffeur, also frequent visitor and dinner companion.

My brother – frequent visitor, scotch and red wine drinking companion, cribbage player and participator in theological discussions. Fish and Chip carrier

My children – bin putter-outers, mail collectors, Oscar carers when Dad away, patient repeaters of everything they say because he is a bit hard of hearing and they keep forgetting

My sister’s friends – caring people who take an interest and listen to him, also occasional scrabble players

Neighbours – keeping an eye out, bringing the bins in.

My uncle  – Dad’s brother who lives in Wales who has visited regularly over the last few years, companion, pen pal, sharer of thoughts, provider of scotch for Dad and champagne for me (favourite uncle)

My cousins – occasional visitors, lunch companions, and provider of meals

Outside helpers – cleaners, gardener, ironing lady, handymen

Church friends – sharers of his faith, occasional chauffeurs, providers of stamps for his philately hobby, telephone correspondents, and one cribbage player

His GP – not my favourite part of the village to be honest, but DOD has complete faith in him and is a regular visitor to the medical practice

Other specialists – at 94, things are starting to not work as well as they should so we visit quite a few medical specialists, most of whom are very kind and caring

This is a big villagefor one person!!  But it’s necessary to enable DOD to stay in his own home.  He is eligible for a government funded care package – however my experience with My Aged Care has not been happy and I don’t want to leave his care at home in the hands of government agencies when they have proven that they are incapable of responding in a timely way to requests for assistance (more on that in another post)

As Honore de Balzac once said:

Bureaucracy is a giant mechanism operated by pygmies

There are now private businesses which can provide home based care, and I am sure I will be using their services in the not too distant future.  I honestly believe that the best care the elderly can have is where there is an emotional attachment between the carer and the person for whom care is provided.  Will that work if people are paid to be carers?

Time will tell.